Fund a National Endometriosis Registry and Audit to Help Improve NHS Care
10,644 people signed this petition to the UK Parliament after it opened on 27 August 2025; it closed on 27 February 2026. The Government responded on 25 February 2026.
The petition
The petition's creator is not named in the Petitions site's published record. Quoted in full from the UK Parliament petitions site.
Fund a National Endometriosis Registry and Audit to Help Improve NHS Care
We call for a National Endometriosis Registry to record, track and annually audit data on diagnosis, treatment & outcomes. We think this could help to:
Hold services to account; Reduce postcode inequality; Ensure endometriosis is treated as a chronic condition with more timely, effective care
Leading charities estimate it takes almost 9 years on average in the UK to be diagnosed with endometriosis, which can cause avoidable pain and mental health struggles, and is linked to fertility problems. We believe that systems to track diagnosis, treatment, or outcomes are inadequate, and that there are limited ways to see where care may be failing or to measure improvement. We think other countries have proven that registries and audits can improve care, shorten delays, and drive research.
The Government's response
The Government published its response on 25 February 2026; the petitions site lists the Department of Health and Social Care as responsible. Its summary:
There are no current plans to develop an endometriosis registry, but the Government acknowledges the challenges and has made progress towards improving endometriosis diagnosis, treatment and care.
The opening 367 words of the 754-word response:
It is unacceptable that women can wait so long for an endometriosis diagnosis, and the Government is taking urgent action to address this.
Improving Diagnosis and Care
Through our 10 Year Health Plan (10YHP), we are committed to prioritising women’s health as we build an NHS fit for the future. Women's Health Hubs (WHH) were established through a pilot to improve care for gynaecological conditions, with care for endometriosis outlined as a core service. WHH aim to address gaps in provision and long waiting times, specifically for those from low socio-economic or ethnic minority backgrounds. The 10YHP neighbourhood delivery of care model will bring together teams of health care professionals, reducing the need for secondary care referrals and ensuring a holistic approach. The Government is supporting integrated care boards to use the learning from WHH pilots to improve local delivery of services to women.
Another key part of the Government’s mission is reducing waiting lists. We are committed to cutting waiting times across all specialities, including gynaecology, and have delivered 5.2 million additional appointments between July 2024 and June 2025. We have confirmed over £6 billion additional capital investment to expand capacity across diagnostics, electives and urgent care. This includes expanding the number of surgical hubs, which provide valuable and protected capacity across elective specialties. Surgical hubs are designed to deliver high-volume, low-complexity elective surgeries, including gynaecological procedures. As of January 2026, over half of the 124 operational elective surgical hubs in England provide gynaecology services. At the end of November 2025, the number of pathways on the gynaecology waiting list was 575,986, a reduction of nearly 20,000 (-3.4%) since the start of July 2024.
In September 2025, we announced an “online hospital” – NHS Online – which will give people the choice of getting the specialist care they need from their home. NHS Online will help to reduce patient waiting times, delivering the equivalent of up to 8.5 million appointments and assessments in its first three years, four times more than an average trust, while enhancing patient choice and control over their care. Menstrual problems which may be a sign of endometriosis will be among the first conditions available for referral to NHS Online from 2027.
Read the full response on the petitions site.
Source and receipt
- https://petition.parliament.uk/petitions.json?state=with_response&page=7UK Parliament Petitions API · read 2026-10-15 · SHA-256
11e1bfe368134ba2… - The petition on petition.parliament.uk
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